Congratulations!
Congratulations on your pregnancy! We know that the days following test results indicative of Down syndrome and/or prenatal diagnosis of Down syndrome can be a scary time full of many unknowns. At the Miami Valley Down Syndrome Association (MVDSA), we understand your fears and concerns. We are here to provide you with support and information during this time. We would be happy to speak with you over the phone, via email or meet in person if you choose. We have available at your request a free packet of materials and information that will give you a better understanding of what you might expect and will always answer any question you have honestly and without judgment. Try to relax and enjoy your pregnancy! We know that this is easier said than done, but you will feel much less worry when your baby arrives. The birth of this baby should be just as much of a celebration as with any baby.
Learning About the Diagnosis
ODH Fact Sheet — The Ohio Department of Health (ODH), in collaboration with medical professionals and several Down syndrome Associations of Ohio, has developed a Down syndrome information sheet to be given to patients with a test result indicating Down syndrome, or a prenatal or postnatal diagnosis of Down syndrome. This fact sheet can be found here.
Some of the highlights found on the ODH fact sheet are that:
- “Children with Down syndrome are more similar to other children than they are different”
- “as a result of improved public attitudes and acceptance, many people with Down syndrome are thriving as active and valued members of the community”, including “children who are involved in social and school programs with their peers and many adults who are employed and live independently or with some support”.
- In addition, research indicates that “the majority of adults with Down syndrome report that they are happy with their lives”.
Understanding a Down Syndrome Diagnosis
The only prenatal booklet to have been reviewed by representatives of national medical and Down syndrome organizations is now available as a free digital book for all. The goal of this booklet is simple: to make sure that all pregnant women and their medical providers have access to the most accurate, balanced, and up-to-date information about Down syndrome. Get a copy today at Lettercase — in English or Spanish.
{Unexpected} parent stories of diagnosis — The Down Syndrome Diagnosis Network has compiled stories shared by parents about the diagnosis phase of their journey. It is full of raw, honest thoughts and emotions to help you through this time.
