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What We Do

ABLE TO WORK ACT and ABLE FINANCIAL PLANNING ACT

We have great news! Thanks to advocacy efforts of MVDSA, NDSS, and countless other organizations and constituents, ABLE to Work Act along with the ABLE Financial Planning Act, which allows ABLE beneficiaries to roll over their regular 529 savings accounts to 529A (ABLE) accounts, passed through the U.S. Congress and was signed into law by President Trump on December 20, 2017.

These bills, respectively, were known as the ABLE to Work Act (S. 818/H.R. 1896)and the ABLE Financial Planning Act (S. 816/ H.R. 1897), and both bills garnered bipartisan support from members of Congress who were willing to listen and ready to act on improving the rights of individuals with Down syndrome and other disabilities.

For more information on ABLE to Work, please click the following link: ABLE to Work Q&A.

STATE INITIATIVES

Organ Transplant Waitlist Anti-Discrimination – House Bill 332

In September, House Bill 332 was introduced by State Representative Niraj Antani (R-Miamisburg) to ensure that individuals with disabilities will not be banned from an organ transplant wait list solely based on their disability. Click here to read the full press release.

We are very excited to support this legislation as it moves through the Ohio House of Representatives! On November 29, 2017, the House Health Committee unanimously voted in favor of this bill and in January 2018, the bill received a unanimous vote by the House of Representatives.

Click here to see more information about the bill’s movement and language.

 

Down Syndrome Non-Discrimination Act (Senate Bill 164/House Bill 214)

The Miami Valley Dow Syndrome Association (MVDSA) has not been involved with the Ohio Right to Life’s proposal of the Down Syndrome Non-Discrimination Act. MVDSA celebrates all of the abilities and gifts of individuals with Down syndrome and we represent families, professionals, and a broader community who are on both sides of this issue. We continue to believe that empowering families with up-to-date and accurate information and resources is the best way to support families receiving a Down syndrome diagnosis– both prenatally and postnatally.

 This belief is reflected in MVDSA’s efforts and success in the proposal and passage of the Down Syndrome Pro-Information Law (H.B. 552), which requires healthcare providers to provide expectant and postpartum patients an unbiased, up-to-date fact sheet about Down syndrome along with the names of both local and national Down syndrome organizations through the Ohio Department of Health.  This law ensures that parents understand a diagnosis of Down syndrome and that all available resources are available to them. This law passed unanimously in both the Ohio House of Representatives and the Ohio Senate, and Governor Kasich signed it into law on December 22, 2014.

WANT TO GET ENGAGED WITH GRASSROOTS ADVOCACY?

While you can always reach out to us directly for ways to get involved, there are also two different opportunities for grass-roots engagement at the national level!

Click HERE for details on the National Down Syndrome Society’s DS-AMBASSADOR Program.

Click HERE for details on the National Down Syndrome Congress’s National Down Syndrome Advocacy Coalition (“NDAC”) opportunities.

Your voice matters. Your story matters. Your advocacy matters.

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